Data security for research participants

In the following article we will describe how we work with data security for research participants. 

The data that Trialy handles:

When a person applies to a study on the Trialy website, Trialy will store the information given in the application. The following data might be stored:

  • Name
  • Telephone number
  • Email
  • Date of birth
  • Specific health data related to the study
De personal data that Trialy stores is only handled and accessible by Trialy and the research group in charge of the study. With each application, we ask the applicant to consent to Trialy and the involved research group to store the information that has been given. If the applicant for any reason wishes to have their data changed or deleted, they should reach out to with their request.

Storing personal data

GDPR became law on the 25th of may 2018, and entails an increased responsibility for companies and organizations that handle personal data. The way Trialy handles data is in line with GDPR, which means that we use clear and informative consent forms, do not collect unnecessary data, protect sensitive data and that we have a transparent personal data policy. It also means that we don’t store any personal data outside of the EU. Registered data is stored in line with the time frame for each study, or for the Trialy panel until the consent is withdrawn. 

Your rights

If you’ve given personal data to Trialy in an application to a study, you always have the right to demand that all data is deleted. People who’ve registered their data through an application on always have the following rights connected to their own data:

  • gain access to their own data
  • to get wrongful data corrected
  • to get their own data deleted
  • object to the data being used for direct marketing
  • object to the data being used for automatic decision making and profiling
  • to move their data

Personal data policy

If you’re interested in reading more about how we handle personal data, information is available in our personal data policy.